Friday, January 13, 2017

The Other Day......

  1. I turned off my alarm
  2. I sat up
  3. Iwalked to the bathroom
  4. I peed in the toilet
  5. I flushed
  6. I washed my hands
  7. I put toothpaste on my toothbrush
  8. I brush my teeth
  9. I filled the cup with water
  10. I rinsed and spit into the sink
  11. I walked to the kitchen
  12. I made a cup of coffee
  13. I turned on the computer
  14. I started drinking my coffee
  15. I check my email
  16. I walked back to the bathroom
  17. I sat on the toilet
  18. I pooped and cleaned myself
  19. I washed my hands again
  20. I put on my socks
  21. I put on my shoes
  22. I put on sweatpants, a sweatshirt and a jacket
  23. I unlocked the apartment door from the inside
  24. I opened the apartment door
  25. locked the apartment door
  26. I called the elevator
  27. I opened the elevator door 
  28. I sent the elevator to the lobby 
  29. I left the elevator 
  30. I opened the apartment building door 
  31. Then I moved on with my day
Those are 30 things that I bet you all take for granted. But there was a six-month period in the middle of 2014 when I couldn't do any of them, I would've had to patiently wait (sometimes not so patiently) for professional caregiver or a family member or friend to help me with any of those individual things. But on the first day of 2017, for the first time in two years, seven months, three weeks and four days, I did all those things without assistance. I was able to get up and leave the house without waking someone up to help me.

So, fuck you GBS! I will not rest. I will not stop. Stop and rest are both my four letter words. I do not want to sit in front of the window, I want to go out. I want to move forward. I will be inspired by people like Steve Prefontaine."A lot of people run a race to see who is the fastest. I run to see who has the most guts......"

People say that being a marathon runner helped prepare me for my fight against GBS. They talk about muscle memory and strong legs and stuff like that. I think that's bullshit. Being a marathon runner taught me how to meet long-term goals, how to work past discomfort and fatigue. It taught me that forward motion was infinitely better than no motion.

So if you happen to see me a race you can cheer "GO MICHAEL" or "GO ACHILLES" or "GO PPTC". But if you really want to drive me towards that finish line, you scream "FUCK YOU! GBS!";

Thanks Ralph@Studio 28 
So like most things, in order to do it well you have to practice. So if you're reading this now take a moment... And give me 10 repetitions in your biggest outdoor voice.  Do it for me. Do it for yourself. Do it for everyone that was affected by this fucking disease.

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

"FUCK YOU! GBS!"

5 comments:

  1. My day is full. There is nothing anyone cane give me to make me feel better and happier.
    Love Dad

    ReplyDelete
  2. You definitely have what it takes to get through anything. "Gold medals aren't really made of gold. They're made of sweat, determination and a hard-to-find alloy called guts." Dan Gable.

    ReplyDelete

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